Mission
To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alström Syndrome
ASI Board of Directors 2019
- Clarissa Bronson (USA)
- Gina Denbow (Canada)
- Randy Douglas (Canada)
- Selma Duzenli (Turkey)
- Clair Francomano (USA)
- Pam Jackson (USA)
- Cassie Johnston (USA)
- Michael Kirby (USA)
- Chelsey Kostick (USA)
- Pietro Maffei (Italy)
- Shelly Marshall (USA)
- Anne Nordstrom (USA)
- Jeff Smith (USA)
Robert P. Marshall (USA), Executive Director
Shannon Caldwell (USA), A Team Leader and Ambassador
Barbara Strubell (USA), Operations and Administration Manager
- Family Outreach Coordinators
Gina Denbow (Canada) – GinaRoxanne.Denbow@nbed.nb.ca - Carrol Lyon (UK) – carrol_lyon@hotmail.com
- Aline Korol (Western Canada) – pkorol@sasktel.net
- Lynn and Cassie Johnston (USA) – Sibling Support Coordinators
johnstoncassie2@aol.com