ASI News

2019 Fund Drive!

Dear Alström Family and Friends, For many years ASI has been “sailing to windward” against the wind and often against the cultural tides that decreed that rare diseases were “orphan diseases” and somehow did not merit the same interest or support garnered by grander national and global health issues. Despite the “knock down” we all …

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Upcoming Alstrom Syndrome Multidisciplinary Clinic at Greater Baltimore Medical Center (GBMC) in September

PLEASE NOTE: THIS CLINIC WILL BE FOR THOSE 1 -12. Anyone is welcome! Information and consults will be in English. WE NEED TO HEAR FROM YOU BY July 20th! BACKGROUND: As many of you are probably aware, ASI has realized the long-held dream of establishing an Alstrom Syndrome Center of Excellence. In what we hope …

Upcoming Alstrom Syndrome Multidisciplinary Clinic at Greater Baltimore Medical Center (GBMC) in September Read More »

Alström Syndrome in the News

Rhythm Pharmaceuticals Announces New Topline Clinical Data from Ongoing Phase 2 Basket Studies Evaluating Setmelanotide in Rare Genetic Disorders of Obesity Further Improvements Observed in Bardet-Biedl Syndrome Patients; Initial Proof-of-Concept Data in Alström Syndrome Demonstrates Significant Weight Loss and Decreased Hunger Rhythm Plans to Initiate Combined Pivotal Phase 3 Trial in Bardet-Biedl Syndrome and Alström Syndrome in …

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