Please note: we do not control or endorse the information presented on these Web sites. They are listed for informational purposes only.
Find addional resources on this page relating to:
- General
- Vision
- Hearing
- Diabetes
- Cardiomyopathy
- Gastroenterology
- other information about Alstrom Syndrome
General
- Genetic Alliance
- National Organization for Rare Disorders (NORD)
- Canadian Organization for Rare Disorders (CORD)
- EURORDIS
- Special Child magazine
- Information for Genetic Professionals, University of Kansas Medical Center
- Council for Exceptional Children
- The Family Resource Center
- Family Village
- Family Voices
- NICHCY: National Information Center for Children and Youth with Disabilities
- Parenting Special Needs
- MUMS Parent-to-Parent Network
- QuitDay – parents staying healthy for themselves and their kids
- Hand in Hand Parenting
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Vision
- Blindness Resource Center
- National Federation of the Blind
- Foundation for Fighting Blindness
- Canadian National Institute for the Blind: C.N.I.B.
- Braille on the internet
- Canine Companions for Independence
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Hearing
- Rockefeller University – hearing loss
- National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind
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Diabetes
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Cardiomyopathy
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Gastroenterology
- Children’s Liver Alliance
- PAGER (Pediatric/Adolescent Gastroesophageal Reflux Association)
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Other information about Alstrom Syndrome
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