About the Alström Syndrome Web Pages

The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing physician.  Any medical or health advice provided on this site is given by medically trained and qualified professionals on the Alstrom Syndrome International Scientific Advisory Board.

These web pages will not make any claims relating to the benefits/performance of a specific treatment, commercial product or service.

These web pages will not publish any medical or health data relating to individual patients. The authors of this web site  honor legal and ethical requirements of medical/health information privacy.  Personal and non-personal information will not be collected by ASI, unless provided on the secure  Contact Form.

Where appropriate, information contained on this site will be supported by clear references to source data and, where possible, have specific HTML links to that data. The date when a clinical page was last modified will be clearly displayed at the bottom of the page.

These web pages will accept no advertisements.

This website uses Google Analytics, a web analytics service provided by Google, Inc. (“Google”). Google Analytics uses “cookies”, which are text files placed on your computer, to help the website analyze how users use the site.

The information generated by the cookie about your use of the website (including your IP address) will be transmitted to and stored by Google on servers in the United States. Google will use this information for the purpose of evaluating your use of the website, compiling reports on website activity for website operators and providing other services relating to website activity and internet usage. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf. Google will not associate your IP address with any other data held by Google. You may refuse the use of cookies by selecting the appropriate
settings on your browser, however please note that if you do this you may not be able to use the full functionality of this website. By using this website, you consent to the processing of data about you by Google in the manner and for the purposes set out above. No personal information is collected from Google Analytics.

For further information on the privacy policy concerning Google Analytics,
please go here: http://www.google.com/analytics/learn/privacy.html

Support for this Web Site is provided by Alstrom Syndrome International, Mount Desert, Maine USA.  © Copyright 2016 Alstrom Syndrome International.all rights reserved. The sources of funding have no influence on the editorial content of the website and there are no conflicts of interest.

Questions or comments about this web site can be directed to info@alstrom.org


Last updated: April 14, 2016

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